Many of our families living with brain cancer contributed to this article--sharing what they hope is helpful advice for those who, most of all, just want to be helpful!
1. “Don’t assume just because someone looks fine on the outside that they are OK.” Variations of this comment came up in multiple interviews with our IoH families affected by brain cancer. Wives described husbands who sleep afternoons in order to save up energy for cheering at a child’s big game that night, or the frustration of large gatherings where others may not understand that noise and questions can be too exhausting.
2. Anxiety can accompany any activity, and sometimes only a close caregiver is able to recognize signs of an impending seizure or other complication.