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Lighting a Candle for Hope

“Scents of Hope,” Marti Ogren’s candle business, is aptly named.  The preschool teacher, who also spent 35 years in a first grade classroom, has found her second calling, and her purpose is bigger than filling your home with pleasant fragrances.  Lest you get the wrong idea, Marti is passionate about the process of developing, testing, and making her soy-based candles. She embraces every step, from brainstorming new products to pouring the warm clear liquid and watching it cool to a creamy solid.  But, she is even more passionate about inspiring hope.

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Finding our way while helping others: longtime brain cancer survivors and caregivers share their experiences

One thing our IoH families all have in common is the desire to help others on this same road, and to make the path easier where possible.  Many of our families affected by brain cancer have particularly positive outlooks, and want to share that with anyone else facing this diagnosis.

 

Brain cancer Painting
Photo credit: Jordan Gersh (Orlando Legacy RetreatⓇ, Feb. 2017

 

What you should know:

 

1. “It’s not a death sentence.  Yes, it’s terminal and I know that.  One day it will get me, but as of right now, it’s not.  Stay strong. Don’t let it get to you, be in the moment, and be there for other people.”  --Shannon Fogarty 

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The O’Gorman Family: What it means to keep hope in the face of cancer

Jennifer O’Gorman’s number one piece of advice for families facing what she has faced seems contradictory, “Everyone has lots of advice for you, but you have to do what you know is best and trust your gut.  You have to do what feels right for you.”

 

In May 2013, Jennifer’s husband Pat was diagnosed with a glioblastoma multiforme tumor in the front of his brain.  A mere eight days after surgery, he was determined to use his experience for good. Jennifer explains, “He felt like his mission was to touch one person every day and tell his story to give them hope.”  She pauses, and with a quiet laugh remembers, “He was never shy and would talk with anyone any chance he had.”

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From Black and White to Color. Cheryl and Matt Broyles describe their faith in the midst of brain cancer

If Cheryl Broyles is a little more teary-eyed than most moms at Oregon State University's graduation this spring, she has good reason.  When her son Grant receives his degree, she just might be thinking about how she never even expected to see him start kindergarten.

 

In July 2000, Cheryl was diagnosed with a Glioblastoma Multiforme brain tumor and told she had a year to live, more or less.  At the time, her children Grant and Clint were three and one. Miraculously, Cheryl has seen them graduate from high school and set out on their own career paths, which, not-so-coincidentally, reflect the values she and her husband Matt have pursued.  The family of wildlife biologists had plenty of experience putting their passion into practice during summer vacations when they celebrated each anniversary of Cheryl’s survival with a huge outdoor adventure.

 

Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ
Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ

 

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Jenna Maier Cooks Up Cash for Inheritance of Hope Families!

Jenna Maier, 14, wants to “ show that no matter your age, you can make a difference.”  The Willow Creek Middle School eighth grader from Rochester, Minnesota, has done just that.  In November, Jenna cooked up a fundraising campaign for Inheritance of Hope. By February, she had raised $500 selling homemade cookies.  

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Volunteer Spotlight: Katelyn Hodge turns 18 while volunteering!

“I wouldn’t have wanted to be anywhere else for my birthday,” said Katelyn Hodge of turning 18 while serving on the most recent Kendra Scott-sponsored Inheritance of Hope Legacy RetreatⓇ to Orlando.  The feeling was mutual--and we hope to celebrate 19 with her as well!

 

Events Director, Betsy Ogren, surprises Katelyn on her 18th birthday
Events Director, Betsy Ogren, surprises Katelyn on her 18th birthday
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Meet our new Coordinator: Jen Roett

When Jen Roett saw Kendra Scott’s metastatic breast cancer necklace charm set on Instagram, “I was like, ‘done!’” she raves, “And I bought it as soon as it came out.”  One-year-old daughter Kennedy loved it as much as mom, and when she reached in to get a closer look, pulled the necklace right off Jen’s neck.

 

Jen went to the Kendra Scott website to find out how she could get her brand-new jewelry repaired, stumbled upon the relationship between Kendra Scott and Inheritance of Hope, and she says, “I began hysterically sobbing, I was so moved.”  The very next day, Jen signed up to volunteer on the February 2019 Legacy RetreatⓇ to Orlando, which was sponsored by Kendra Scott, for families affected by metastatic breast cancer.   

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Communicating and giving through art

Hannah Black will graduate from high school on March 22, just days ahead of her 22nd birthday, and when she does, her contagious smile will say what words cannot.  The young artist is unable to use speech to communicate, but expresses herself through facial cues, a generous spirit, and art. No diploma could ever capture Hannah’s accomplishments.  

 

Last year Hannah sold her artwork and donated all proceeds to Inheritance of Hope (IoH),  a nonprofit organization serving young families in which a parent has been diagnosed with a life-threatening illness.  Hannah knows the struggles of IoH families all too well, as she lost her own mother Laura to glioblastoma in April 2016.

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Family Spotlight: Henry and Melanie Nicsinger on beating the odds

Henry Nicsinger was cured of cancer once, then he was cured again, and again, and again, and again. Diagnosed with testicular cancer at 31, declared cancer-free after undergoing surgery, Henry went through surgery once more twenty years later when he was found to have a second primary bilateral occurrence of the disease.  

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Who is Holley Kitchen?

This piece was originally posted on October 12, 2017 as Inheritance of Hope celebrated Kendra Scott's "Holley Day, in remembrance of Kendra's dear friend, Holley Kitchen. Holley and her family were served on an Inheritance of Hope Legacy RetreatⓇ in May 2015, just eight short months before she passed away from metastatic breast cancer. February 13, 2019 would have been her 46th birthday. Happy Heavenly birthday, Holley!

  

How can I make a memory with my kids today that will last them a lifetime?

 

Of all the things Holley Kitchen wanted to be—wife, mother, sister, daughter, friend—the role she is most widely known for is something no one wants to be: the face of metastatic breast cancer. Like most true heroes, Holley was an ordinary woman facing extraordinary circumstances. How she soared beyond those confines will forever define her as a champion of this disease. 

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