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Growing Up with a Sick Mom

Coming to college and discussing childhood with my friends has been a fascinating exploration. My roommates and I come from different backgrounds. While we all grew up under similar circumstances, all American, UNC Chapel Hill-bound children, there are variances that I find striking. Listening to them recount their childhoods is always slightly surprising, and brings out the nuances of my childhood that were contrary to those of my friends. I have begun to recognize how different growing up with a sick parent actually makes your life - the before, after, and during. 

 

Ashlea and her mom, Kristen
Ashlea and her mom, Kristen
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Faces of Holley Day: Ann Camden on how to find your voice like Holley Kitchen

I didn’t know Holley Kitchen but I visualize her face when I hear her name. She has cute blonde hair and expressive eyes. When I first searched online for metastatic breast cancer in 2016, her powerful video was one of the first advocacy pieces that I saw. I cried at the computer when I watched and then I called my husband to sit beside me so we could watch it together. I handed him a Kleenex. Like Holley, I was a young mother that will be fighting cancer until my journey on earth is over.  

 

Holley Kitchen used her voice for good
Holley Kitchen used her voice for good
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3 Simple Ways to Make People Feel Loved

There’s something irreplaceable about intentionality, no matter how small the gesture. I, for one, would prefer a thoughtful, handwritten note over a lavish gift of my own choosing. However, it can be very difficult to find the time and energy to go out of your way emotionally. But, because I believe in the value of intentionality, I’ve found a few fun things to do that make it feel like less of an endeavor and more of a creative activity. The list is quite standard, but I have added a personal twist to make it a little more fun. As a huge bonus, the recipient of your gift will recognize the extra effort put into their gift, and feel all the more loved as a result! 

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Family Spotlight: Amanda Coleman on her husband Mike’s Legacy

Of her family’s Inheritance of Hope Legacy RetreatⓇ, Amanda Coleman comments, “It’s pretty amazing what three days came to!” Amanda, her late husband Mike, and their daughter Leah joined IoH in May 2013 for an Orlando Legacy RetreatⓇ, while Mike was battling glioblastoma multiforme brain cancer. 

 

Mike had vacationed at Disney World as a child himself, which Amanda describes as “his favorite place on earth.”  Some of the family’s best memories from their trip were Leah meeting Princess Merida and Mike insisting on carrying his small daughter through the park when she began to tire out.  Amanda remembers, “He said he didn’t know how long he would be able to do that, and he wanted Leah to remember that it was her Daddy who carried her.”

 

Amanda, Leah and Mike on their Legacy RetreatⓇ

 

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What people with brain cancer want you to know

1. “Don’t assume just because someone looks fine on the outside that they are OK.”  Variations of this comment came up in multiple interviews with our IoH families affected by brain cancer.   Wives described husbands who sleep afternoons in order to save up energy for cheering at a child’s big game that night, or the frustration of large gatherings where others may not understand that noise and questions can be too exhausting.  

 

2. Anxiety can accompany any activity, and sometimes only a close caregiver is able to recognize signs of an impending seizure or other complication.  

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Finding art in unexpected places

This collection of work was inspired by my mom for her perseverance and strong will. She has always been my role model and is the strongest woman I know. In the summer leading up to my junior year of high school, my mom was diagnosed with a stage four brain tumor called a glioblastoma. After my mom’s diagnosis, I became very involved in her treatments and doctors’ visits. I enjoyed accompanying her to appointments and often would ask the doctor and surgeon questions, so I could better understand what my mom was going through. At each appointment we would go over MRI and CT scans. First, to prepare for surgery, in which they would remove as much as they could. Secondly, to continue observing the growth or shrinkage of the tumor, post operation and treatments.

 

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Family Spotlight: Gabe and Erin Matheny’s survivor story

“If I could, I would make people go on an Inheritance of Hope Legacy RetreatⓇ,” says Gabe Matheny, former EMT from Corinth, Texas.  Diagnosed with a glioblastoma multiforme tumor, Gabe attended an Inheritance of Hope Legacy RetreatⓇ to Orlando with his family in May 2018.  “Originally, I was hesitant to go, but IoH was probably the biggest, best experience that has happened to us, and one of the best decisions we’ve ever made.  It was a huge relief for us, and we had so much fun with our kids.” He goes on, “Plus, the resources, the memories we got out of that, and the new friendships we still have...  There would have been absolutely no way for us to do that otherwise. From the first moment we got off the plane, the welcome we were given--the staff and volunteers just did so much. You could see it in their faces.”  Gabe pauses to consult with his wife, Erin, “what is the word I’m looking for?”

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Lighting a Candle for Hope

“Scents of Hope,” Marti Ogren’s candle business, is aptly named.  The preschool teacher, who also spent 35 years in a first grade classroom, has found her second calling, and her purpose is bigger than filling your home with pleasant fragrances.  Lest you get the wrong idea, Marti is passionate about the process of developing, testing, and making her soy-based candles. She embraces every step, from brainstorming new products to pouring the warm clear liquid and watching it cool to a creamy solid.  But, she is even more passionate about inspiring hope.

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From Black and White to Color. Cheryl and Matt Broyles describe their faith in the midst of brain cancer

If Cheryl Broyles is a little more teary-eyed than most moms at Oregon State University's graduation this spring, she has good reason.  When her son Grant receives his degree, she just might be thinking about how she never even expected to see him start kindergarten.

 

In July 2000, Cheryl was diagnosed with a Glioblastoma Multiforme brain tumor and told she had a year to live, more or less.  At the time, her children Grant and Clint were three and one. Miraculously, Cheryl has seen them graduate from high school and set out on their own career paths, which, not-so-coincidentally, reflect the values she and her husband Matt have pursued.  The family of wildlife biologists had plenty of experience putting their passion into practice during summer vacations when they celebrated each anniversary of Cheryl’s survival with a huge outdoor adventure.

 

Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ
Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ

 

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Jenna Maier Cooks Up Cash for Inheritance of Hope Families!

Jenna Maier, 14, wants to “ show that no matter your age, you can make a difference.”  The Willow Creek Middle School eighth grader from Rochester, Minnesota, has done just that.  In November, Jenna cooked up a fundraising campaign for Inheritance of Hope. By February, she had raised $500 selling homemade cookies.  

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